Volume 2 Issue 10 - May 15, 2004
World Thalassaemia Day observed
DNIS News Network -- May 8 was World Thalassaemia Day, an important event for millions of sufferers in India.
Hospitals around the country used the day to increase awareness of the disease and to encourage people to give blood to help children with thalassaemia.
Blood donation is vital for thalassaemia patients, who require a minimum of one blood transfusion every month. Even then the cost is beyond the means of 90% of patients. The only cure is a bone-marrow transplant, which is an option only for a very small minority.
World Thalassaemia Day was the perfect opportunity for health workers and NGOs to draw attention to the plight of sufferers and to spread awareness of the disease and how it can be prevented.
The figures are striking; thalassaemia is India's most common hereditary disease, with about 8,000 affected babies born each year. The country has 30 million carriers, an estimated 15% of the world's total.
However, it is largely a hidden disease as carriers are symptomless and will not know the risk unless they are tested. If two parents are both carriers, there is a 25% chance of any of their offspring being born with the disease.
Thalassaemics India, a Delhi-based society of parents and doctors, hopes that increased awareness will persuade couples to be tested in advance of getting married or having children. This is the surest way of reducing the incidence of children born with the disease.
DNIS is produced and managed by:
National Centre for Promotion of Employment for Disabled People
Screening Guidelines to be followed by CISF Security Staff for Passengers with Disabilities at Indian Airports
Rights of Persons with Disabilities Bill
Mental Health Care Bill
CRPD Monitoring Report
- List of Awardees 2014 :NCPEDP MPHASIS Universal Design Awards (1 MB)
- List of Awardees 2013 :NCPEDP MPHASIS Universal Design Awards (1.44 MB)
- List of Awardees 2012 :NCPEDP MPHASIS Universal Design Awards (804 KB)
- List of Awardees 2011 :NCPEDP MPHASIS Universal Design Awards (864 KB)
- List of Awardees 2010 :NCPEDP MPHASIS Universal Design Awards (623 KB)
SHELL HELEN KELLER AWARDS
NCPEDP-Shell Helen Keller Awardees 2013
- IAS winner awaits his job
- Disability highlighted in education survey
- Scholarship scheme goes from strength to strength
- Independents launch joint campaign for good governance
- Delhi University makes disabled students undergo medical examination
- Delhi authorities claim to ramp up access issue
- Election Commission fails to fulfil SC order
- World Thalassaemia Day observed
- Bus shelters designed with the disabled in mind
- Voters choose to play safe with big parties
Disability News and Information Service is produced and managed by: